Laura

Laura

Laura talks about how AV1 helped her to get back to studies.

Laura is 15 years old and has a congenital muscle disease which for her has caused swallowing difficulties and impaired lung function. Via AV1, she describes that she can now take part in group work and gets access to more information than ever before.

The robot only gives me so much. It is absolutely fantastic.

15-year-old Laura Kehler sits on a gray sofa in her room. She is tired. She is still wearing her night clothes and has wrapped the covers around her. Yesterday she was at the Rigshospitalet for a check-up, before a major back operation awaits her. Laura has been through many examinations, many operations, many sick days.

Under Laura's blouse hides a stoma , which she is very open about, but also many scars, which bear witness to a life of many operations. Laura has the muscle wasting diagnosis Congenital myopathy , which for her means a lot of difficulty swallowing and reduced lung function. She has had 62 pneumonias.

Absence from school of over 60 percent

The many sick days means that she has an absence of over 60 percent at school, and since the corona virus came to the country, she has been in isolation. She doesn't see anyone physically, and she misses giving her friends, family and pregnant older sister a hug. Even before the corona, Laura got a home teacher who teaches her twice a week for three hours. But the home teacher cannot replace the social interaction and interaction with classmates, which Laura would like to be a part of. But the school robot that she was given this spring via a pilot project in the Muskelsvindfonden can do that.

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